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Op-Ed: Home care system is stretched past its breaking point

Pastor Garry

It’s now been five weeks since I’ve had a shower. I keep asking for female PSWs to help me shower on Monday and Thursday evenings before bed, but that hasn’t happened.

I’ve also asked several times to have my mid-morning PSW [personal support worker] visits moved earlier—between 8 and 9:30 am—so I can use the bathroom when I need to. Too often, I’ve ended up waiting in my own waste for three or four hours, which means extra laundry and unnecessary discomfort.

My wife, Debbra, is supposed to get help with laundry, light housekeeping, meal prep, and leg exercises. None of that support is showing up as promised.

The PSWs say they don’t have enough time for laundry, or to transfer clothes in and out of the dryer. They say they need more time for showers now—up to an hour and a half—but that time isn’t being given.

Ontario Home Care Administration

Publicly funded home care agencies are straining under chronic underfunding, staffing shortages, and systemic inefficiency.

This piece looks closely at how they fail their clients by sharing my own experience as a case study: weeks without a shower, having to wait hours for basic toileting help, unfulfilled support for household and rehabilitation needs, and the toll all this takes on family caregivers.

These aren’t just personal frustrations—they point to deeper cracks in the system, where the needs of medically vulnerable people are lost amid rigid scheduling and the business priorities of PSW agencies.

Home Care Vs Institutional Care

In places like Ontario, home care is pitched as a cheaper, more personal alternative to institutional long-term care. At the core of this model are Personal Support Workers (PSWs), who help with the basics—bathing, toileting, eating—and with household tasks like cooking and cleaning.

But when home care is privatized and run by agencies, service failures become common.

The following analysis is based on my household’s direct experience, focusing on:

  • Denial of basic hygiene (going weeks between showers, despite scheduling requests for Monday and Thursday evenings)
  • Delays in getting to the bathroom, forcing long waits in soiled clothing
  • Promised but undelivered help with household tasks and rehabilitation
  • PSWs saying they can’t get everything done in the time they’re given

By looking at these problems, we can see how the business model of home care, the erosion of PSW working conditions, and the neglect of clients’ basic rights all come together in day-to-day failures.

How the System Fails in Practice

Here’s what’s actually happening:

Hygiene Neglect: I’ve gone almost five weeks without a shower, even though I keep asking for female PSWs to help on set days.

Bathroom Delays: My care visits are scheduled too late in the morning. I’m often left sitting in waste for hours, which leads to extra laundry and risks to my skin and health.

Ignored Care Plans: Debbra, my wife, is assessed to get help with laundry, cleaning, meal prep, and leg exercises. This support isn’t happening.

Time Pressure on Workers: The PSWs themselves say the time slots aren’t enough. They ask for 90 minutes for showers, more time for laundry, but the agency doesn’t allow it.

The Systemic Problems, Broken Down

Denying Basic Dignity
Not having regular access to showers is more than a comfort issue—it’s about health and dignity. Five weeks without a shower is a breach of care standards, risking both physical and mental health. Forcing someone to wait hours in their own waste isn’t just uncomfortable; it’s degrading and dangerous, leading to skin damage, infections, and stress.

Gender Preferences Matter
There’s a reason I ask for female PSWs for showers: safety, privacy, and dignity. Ignoring this request isn’t just about scheduling—it’s about trust and respect. Many people with disabilities are only comfortable with certain caregivers, especially for intimate tasks. Dismissing these needs can cause distress and make people refuse care altogether.

Scheduling Ignores Human Needs
The refusal to move my morning visits earlier shows a disconnect between how agencies schedule visits and what people actually need. Algorithms and efficiency targets don’t match up with real biology—people can’t just wait for hours to use the bathroom because it fits a corporate schedule.

The Hidden Burden on Families
Home care is supposed to help both the client and their household. When agencies don’t deliver on promised support, the burden falls on family caregivers—in this case, my wife Debbra. This leads to exhaustion, injuries, and sometimes forces families to consider institutional care sooner than they want.

PSWs Aren’t to Blame—It’s the System
PSWs keep saying they need more time. But agencies only allow short visits—often 30 to 45 minutes—even when the tasks are complex. When a worker has to rush through a shower, drying, and laundry, something always gets missed. The system pits workers against clients, making both sides lose.

Bigger Picture: Why This Matters

PSW Work is Precarious
The problems at PSW agencies speak to how insecure PSW jobs are. They’re low-paid, lack benefits, and often don’t get paid for travel. High turnover and burnout mean clients rarely get the same worker twice, making it hard to build trust or continuity.

The ‘Cost Savings’ Myth
Home care is sold as “cost-effective,” but that’s often code for “underfunded.” When home care fails:

  • Clients get sicker or injured from neglect.
  • Family caregivers burn out and need medical help themselves.
  • Emergency services end up picking up the slack, shifting costs elsewhere.
What Needs to Change

To fix these problems, both policy and agency practices need serious overhaul:

Stop Rushing Care: Visits should be as long as the care plan requires, not squeezed for profit. Showers and complex care should get 60–90 minutes if needed.

Enforce Contracts: Health authorities must audit agencies and penalize them when care plans aren’t followed.

Support Workers: Pay PSWs more, guarantee steady hours, pay for travel, and give them proper training.

Respect Client Choices: Always honor client preferences for caregiver gender and keep staff consistent where possible.

Final Thoughts

What happened to me and Debbra isn’t a one-off mistake. It’s the result of a home care system stretched past its breaking point.

When an agency leaves someone unbathed for weeks, ignores their needs, and fails to help families as promised, it’s lost sight of its purpose.

Fixing this means moving away from profit-driven care, and back to a model that puts people’s health, dignity, and needs first—with proper funding and oversight.

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